BHC is a leading U.S. clinical and research center specializing in Long COVID, ME/CFS and fibromyalgia. The BHC offers expert patient care, education and evidence-based resources to improve understanding and develop treatments for complex immune conditions.
A pioneering patient-led organization that created one of the first Long COVID support groups, combining advocacy, community building and research to amplify patient voices and drive change in healthcare and policy.
A nonprofit focused on conditions of brain inflammation—triggered by infections, autoimmune responses, allergies, or injuries. It supports research, education and advocacy to improve diagnosis and treatment.
A grassroots organization led by Long COVID patients that advocates for disability rights, workplace protections and health equity. Their focus is ensuring the voices of those affected are central to policy and research efforts.
A non-profit organization that seeks to improve the lives of individuals living with autonomic nervous system disorders through research, physician education, public awareness and patient empowerment programs.
A coalition of patient advocates, scientists and nonprofits working together to advance research, education and policy solutions for Long COVID and related post-viral illnesses. They focus on raising awareness and influencing decision-makers to accelerate progress in treatments and care.
A patient-led advocacy group focused on supporting families affected by Long COVID, with special attention to children and caregivers. They offer resources, community connection and policy advocacy to improve care and outcomes.
A patient-led advocacy group dedicated to amplifying marginalized voices in the Long COVID community, advancing health justice and pushing for systemic change through activism, education and policy reform.
A strong and long-standing organization that can provide advocacy, symptom management handouts, webinars and support with a strong regional focus for Massachusetts residents.
A national nonprofit organization providing legal and advocacy support to people impacted by COVID-19, including assistance with healthcare access, workplace protections, disability rights and navigating government programs.
Focused on research, advocacy and patient education for ME/CFS and Long COVID, including updates on clinical trials and treatments.
Their mission is to improve the quality of life for people living with postural orthostatic tachycardia syndrome (POTS) through research, advocacy and support.