Long COVID Research Organizations

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RECOVER is the largest federally funded research initiative focused on Long COVID. It brings together researchers, clinicians, and people with lived experience to study why Long COVID develops, how it affects different organ systems, and which treatments may help. RECOVER includes large observational

studies, clinical trials, and pediatric and adult cohorts across the United States.

PolyBio Research Foundation is a nonprofit focused on understanding infection-associated chronic conditions, including Long COVID and ME/CFS. PolyBio supports intensive, multidisciplinary research into immune dysfunction, viral persistence, autoimmunity, and tissue-level pathology. The foundation brings together leading scientists from around the world to conduct coordinated studies using advanced laboratory techniques. 

Open Medicine Foundation is a nonprofit dedicated to accelerating research into ME/CFS, Long COVID, and related chronic post-infectious illnesses. OMF funds and coordinates international, multi-institution research efforts focused on disease mechanisms, biomarker discovery, and treatment development. OMF also convenes scientific meetings, publishes accessible research updates, and emphasizes rigorous biology-driven science 

Remission Biome, also known as Renegade Research, is a patient-led research initiative that empowers people with Long COVID and ME/CFS to actively participate in scientific discovery. The organization uses decentralized, open research methods to study symptom patterns, microbiome changes, and treatment responses. 

The Patient-Led Research Collaborative was founded by people living with Long COVID to ensure that patient experience shapes research priorities and study design. PLRC collaborates with academic institutions, government agencies, and policymakers to improve equity, inclusion, and relevance in Long COVID research.

Based at Mount Sinai, the Cohen Center integrates research, clinical care, and education to advance understanding of Long COVID, ME/CFS, and other post-infectious and complex chronic conditions. The center brings together clinicians and scientists to study disease mechanisms, identify biomarkers, and develop evidence-based treatmen approaches.

The Bateman Horne Center is a nonprofit Center of Excellence dedicated to improving lives for people with ME/CFS, Long COVID, fibromyalgia and related post-viral conditions. They combine clinical care, research and education to expand access to informed diagnosis and treatment, support scientific discovery, and empower patients and healthcare providers with evidence-based resources. 

Amatica is a patient-founded precision health research initiative focused on complex chronic illnesses such as Long COVID and ME/CFS. Participants can choose to complete advanced research-grade testing, including whole RNA sequencing and multi-marker protein panels, to generate a detailed biological profile. 

SILC advances clinical care for Long COVID  through three areas of work: webinar-based medical training, virtual collaboration for patient care, and large-scale, AI and machine-learning driven research.  SILC-supported researchers are studying the symptoms of 6,000 patients and looking for clues in their blood for biomarkers.